Abbygail Marie RobinsonAbby's mom is a customer of Bella's Bowtique. I have been following little Abby for a bit now, and didn't realize that her mom was a customer of mine until a few short weeks ago!
Let me tell you a bit about Abby using her moms words!
"Abby was diagnosed with Dandy Walker Malformation, Congenital Hydrocephalus, and Agenesis of the Corpus Callosum.
The variation of Dandy Walker that Abby has basically means that she has a retrocerebellar archanoid cyst that sits where her spinal cord and cerebellum meet. This cyst caused her brain to pool spinal fluid unable to drain properly into her body like yours and mine does. Due to the pooling spinal fluid, her head basically was like a water ballon. The more fluid you put in, the bigger it gets. Abby's brain tissue was smashed up against her skull, causing brain damage and abnormal brain anatomy. Hydrocephalus has the potential to not only cause severe brain damage, but also death. Abby is missing the middle part of her brain, which is called the Corpus Callosum. Some people can live without this, and some can't. This is potentially dangerous at all times, and there is nothing we can do to fix it.
Abby will never be in the clear from potentially life threatening situations. Abby has a shunt to drain the spinal fluid from her brain to her belly. Shunts can last from 5 minutes to 30 years. Abby is on her 4th shunt, and will soon have a revision, but we never know when one will malfunction. It is ever present in our minds that Abby can at any time throughout her life go into emergency brain surgery.
Every day is spent helping Abby reach her full potential and striving to bring awareness to these causes. These disorders are rare in the form that Abby has; but there are many variations; and many children are misdiagnosed every year, and continue to suffer brain damage."
This weekend Bella's Bowtique is offering to donate 50% of all profits made to Abby's family to help with medical bills, therapeutic equipment bills, hospital bills, ect.
You can learn more about Abby through her Facebook!
If you are unable to make a purchase to help - then lend your support by sharing this and spreading the word to your family and friends!!!